Easter just passed me by this year. I barely remember it.
Last weeek was the kiddo's Spring Break which we heralded in with an exciting day at the Boston Marathon and followed it with two mad days of city exploring, albeit in the rain. By Thursday the kiddos were ready for a rest day, we had really been pounding the pavement and everyone was exhausted. They slept in, relaxed, read books, watched a movie... I took advantage of the time to catch up on all the laundry that had accumulated over the few days. There were meals to be planned and the fridge and pantry needed re-stocking, there was hair from the Oversized Dog all over the house and that needed vacuuming, there was toothpaste adorning the bathroom sink and mirror, (sometimes I wonder if they're actually finger-painting with toothpaste rather than brushing their teeth, honestly!) all in all this house needed to be whipped back in to some kind of order and passable cleanliness. By Thursday evening I collapsed into bed, exhausted.
Friday morning, when all I could muster as a good morning to Hubby was a breathy squeak, I knew I was in trouble. I had lost my voice, was completely congested, throat was extremely sore, my body ached and head felt as heavy as lead. I had a fever but the most worrisome symptom was the cough that rolled around in my chest. The secretions were thick and blood tinged, never a good sign, but I was managing to expel them and that was important. I knew that over the next few days I would have to be very vigilant in trying to get as much of those secretions up and out as I could.
Those of us with chronic inflammatory lung conditions, such as sarcoidosis, are at risk for developing something called bronchiectasis. The airways lose their elasticity from being inflamed all the time, they become lazy and not as effective in doing their job in helping to expel secretions. When secretions pool and just stay in your lung it becomes a perfect breeding ground for all kinds of viruses and bacteria, not least of all, those causing pneumonia. It was time to employ those coughing techniques that a respiratory therapist had taught me in 2007 when I was battling hard with an aspergillus infection in my lung.
I find the "Huff-Cough" (at least that's what I call it) to be the most effective. You take a deep breath and literally "huff" ten times, (it helps if you think of the Big Bad Wolf!) as if you were trying to blow out a candle but with your mouth wide open, lips apart, almost as if you are smiling and with as much force as you can muster. You have to resist the urge to cough mid-way through your ten huffs. Huffing will move secretions around and you'll feel that but don't give in to that cough just yet. After your tenth huff only then can you cough and it's best to cough with your chin dropped to your chest and your mouth and jaw in an "eee" position (almost like a smile) rather than in an "o" position. And you should be wonderfully and productively successful! Bet you didn't know there was a right and a wrong way to cough!
So, I spent the Easter weekend in bed, feeling totally miserable but grateful that it was a weekend and that Hubby could help me out, grateful for the phonecalls of concerned family members. I started antibiotics on Monday and am slowly starting to return to normal activities so all is well, or soon will be.
Meanwhile I'll huff and I'll puff and.......
"Well, you will never run a marathon." Etty suffers from ongoing Sarcoidosis which is a chronic inflammatory disease that primarily involves the lungs. Niamh, her sister, likes to run and is going to run the Cork City Marathon on June 6th to raise funds for those suffering from chronic lung diseases. This blog will be a parallel account of their trials and tribulations in the coming months: the would-be marathoner; the mother-of-three moving home and struggling with serious, ongoing Sarcoidosis.
Really hope you are feeling much better at this time Eithne, I was concerned when I read your latest entry just now. I also meant to say re the children watching the Boston marathon that it must have been an inspiration and example for them,an added bonus to what was obviously a great family day out. I appreciate Niamhs dedication all the more. I also admire Mikes conscientious attitude to his work, another fine example to the younger generation.
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