Just a quick note of the tremendous achievement of today. In the midst of the ongoing chaos I need to pause and celebrate!
I have an appointment this week with an Internist who will be my primary care doctor and the following week with a pulmonologist who will be my specialty doctor and my link to cardiology, rheumatology, dermatology, neurology and any other "ologies" that want to poke at me.
My task tomorrow....make copies of my medical records, several inches thick, and imaging to mail to above pulmonologist for review before the first appointment which I am told will be for 1 hour. My goodness, a whole hour, but no need to worry, we will have plenty to talk about!
I wrote to a friend today that I feel like I am in constant crisis mode these days. Being finally reconnected to healthcare helps tremendously to help me return to that grounding that I have been craving.
"Well, you will never run a marathon." Etty suffers from ongoing Sarcoidosis which is a chronic inflammatory disease that primarily involves the lungs. Niamh, her sister, likes to run and is going to run the Cork City Marathon on June 6th to raise funds for those suffering from chronic lung diseases. This blog will be a parallel account of their trials and tribulations in the coming months: the would-be marathoner; the mother-of-three moving home and struggling with serious, ongoing Sarcoidosis.
That is great news Etty. At least, now, someone to look after you. Imagine getting an hour of a consultant's time. Fantastic. Good work, well done!
ReplyDeleteBest of luck meeting your new team this week and beyond - how lucky they are to be meeting such a great patient. x
ReplyDelete